Sunday, June 04, 2006

The Boy Whose Skin Fell Off

Is a really great Channel 4 Documentary.

Its about a guy called Jonny Kennedy who died in 2003 aged 36.
He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa

In my opinion he was a special person. He had incredible strength of character, and calmly stated that the only reason for being alive is to 'be helpful'. And had nothing but compassion for people who were unable to see that. Pretty radiant really.

Amazing programme if you ever get a chance to see it.

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